Saving Karly's Life

Saving Karly's Life

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WDTN Photo/Jackie Sprague

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Cameron Hartman, 10, died from a rare autoimmune deficiency.  (Photo/Hartman family)

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Could you save Karly's life?

Updated: Saturday, 09 Feb 2013, 11:34 PM EST
Published : Saturday, 09 Feb 2013, 9:42 PM EST

CENTERVILLE, Ohio (WDTN) - "If I don't find a match, then I'll have to chose other options that maybe aren't as good for my health.  I may not make it through those things," explains Karly Koch.

Fighting for hope, that's what Karly is doing.

The 18-year-old has a rare immune deficiency syndrome know as Dock8.

"I have problems with every part of me.  My lungs, my ears, my nose.  If it's not one thing bugging me one day, then it's another thing bugging me one day.  So, it's a constant struggle," says Karly.

Karly is in desperate need of a bone marrow transplant.  She has been trying to find a donor for 3 years.

Karly's sister Kelsey lost her battle with the same rare disease in 2011.

Shortly after that, she met 10-year-old Cameron Hartman who also had Dock8 syndrome.

"At that point, I hadn't know any other Dock8 patients like me and then I met Cameron and I didn't feel as alone. I felt like someone was there, a tangible person who could understand.  I was just so thankful for him," comments Karly.

Cameron had a bone marrow transplant but lost his battle with the rare disease in January of this year.

Though he continued to battle, he always had one thing on his mind, helping Karly.

"It's been his goal to get a match for Karly and since he's passed, this was the first thing that we did in honor of him," explains Emily Jones, Cameron's aunt.

So, Cameron's loved ones held a donor registry event at Normandy United Methodist Church Saturday in Centerville.

"It just makes me proud, honored.  Cameron would be so proud because this is what he wanted to do for Karly," comments Amy Hartman, Cameron's mom.

And you might be the one who can save Karly's life by joining the marrow registry.

"If you're between the ages of 18 and 44, It takes 6 minutes of your time and you truly could save someone's life," says Emily.

"The best option would be to have a perfect match and at least have some kind of a chance at living, you know, and maybe getting cured by it.  That would be my plea, you know, just save my life," explains Karly.

The families plan to hold more donor registry events like this one in the coming weeks.

For more information on how you can find out if you're a match for Karly, go here .

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